My Bucket List – What I Dream of Doing to Help Others
Bucket lists are fun to make. They are fun to dream about. There are things that you dream of doing one day. Some of them are realistic. Some of them…
When You Don’t Even Have Access to Go to the Bathroom
Disabled people are the world’s largest marginalized group, and yet often some of the most excluded people in the world. Imagine your most basic needs as a human. Water. Shelter….
The Reality of Finding a Therapist When You Are Marginalized
While therapy can be helpful for some, for others it can be hard to find therapists that are safe to work with.
Parents of Kids with SMA Benefit from Listening to Adults with SMA
As we have seen in many other individualized disabled communities, parents of kids with SMA tend to have little understanding of the lives that adults with SMA lead. For years,…
Stop MDA & #EndTheTelethon Now!
The MDA telethon needs to be ended for good for the benefit of all of us with neuromuscular disabilities.