Don’t look away. Your life depends on it.
The world has never been good for me. I cannot make my life great again because my life never was great. I’ve had little pockets of happiness from time to…
When You’re Your Family’s Shame
When I was nine years old I had to apologize to my family for being disabled. I’ve always been my family’s secret shame.
The Bully Who Took Me Skating
There was this girl in elementary school that bullied the crap out of me. She bullied a huge amount of people, but I felt like I was one of her…
My Bucket List – What I Dream of Doing to Help Others
Bucket lists are fun to make. They are fun to dream about. There are things that you dream of doing one day. Some of them are realistic. Some of them…
When You Don’t Even Have Access to Go to the Bathroom
Disabled people are the world’s largest marginalized group, and yet often some of the most excluded people in the world. Imagine your most basic needs as a human. Water. Shelter….
The Reality of Finding a Therapist When You Are Marginalized
While therapy can be helpful for some, for others it can be hard to find therapists that are safe to work with.
Parents of Kids with SMA Benefit from Listening to Adults with SMA
As we have seen in many other individualized disabled communities, parents of kids with SMA tend to have little understanding of the lives that adults with SMA lead. For years,…
Stop MDA & #EndTheTelethon Now!
The MDA telethon needs to be ended for good for the benefit of all of us with neuromuscular disabilities.
Sticks and Stones May Break Your Bones, but Words Can Really Hurt
People say words don’t hurt, but some words can do a lot of damage.
OCD Life – What is Repeating?
I have Obsessive Compulsive Disorder (OCD). I was diagnosed some years ago. I knew for years before that that I probably had OCD, but getting diagnosed validated that. One thing…